A woman has not had a spice for six years after she was hit with a rare state of medication at night.
Anna Gray, 27, spent three months in agony before she was finally diagnosed with Fowler’s syndrome – a rare condition that stops bladder emptying.
Anna first noticed symptoms in November 2018 when she ended up in hospital with a kidney infection after failing to go a day.
Weeks later, she still had trouble going to the toilet and had two liters of urine drained from her bladder.
Anna claims she was “fobed doctors” – who, she says, asked her to “continue” to go home.
She sat in hospital again on Boxing Day 2018, and doctors finally conducted tests and found that there was no activity in her bladder – meaning the brain “stopped communicating” with the organ.
Anna was shocked when she discovered that they could do “nothing more” doctors, and she would never be able to be “of course” again.
It was finally equipped with a permanent catheter in its stomach – a tube inserted into the bladder to drain the urine – and empty the attached bag several times a day.
Anna is now discussing future steps with her pain management team, and hoping to raise awareness of the rare situation.
Anna, who is currently unable to work because of her illness, by Sailsbury, Wiltshire, said: “There has been a massive influence of every area of my life.
“Last year I was mostly at home – touched me seeing friends or dating.
“Talking about going to the toilet is still very taboo – especially among women.
“Hopefully speaking outside I can help others.”
Anna had never experienced bad health before wakeing up in November 2018 able to go for a wee.
She ended up in the hospital and doctors inserted a catheter to help relieve her bladder – suspected that a kidney infection was the cause.
Anna hoped the case was resolved until she was hit by the same situation in December 2018.
Anna said: “At first, when I couldn’t go in the morning, I thought maybe I just didn’t need to go.
“But while the day violated, I thought” that’s not right. “
“Such things don’t happen to people my age.
“GP said” Continue to try “and light the tap to help me go.
“I had a lot of pain and there was some bad communications when they described me laxative – which did nothing to help.”
Over the next two months, Anna had numerous trips to the hospital, where they had to ease her bladder with a catheter.
She pushed for more tests and was finally diagnosed with Fowler’s syndrome in February 2019.
Doctors found that there was no activity in her bladder and found that “it would never work again normally.”
Anna said: “I was told that there was nothing they could do and I would need a catheter for life.
“I think I went through a process of grief to start because it was so unknown.
“But it was a relief to know it wasn’t everything in my head.”
The condition affects only women and is the difficulty or inability to pass the urine due to the failure of the bladder sphincter muscles.
The cause is still unknown, but it can often develop after birth or surgery.
Anna was learned how to self-cateterize five times a day in order to ease her bladder by hand.
But after numerous infections, it was equipped with a more permanent system called a suprapubic catheter in 2020.
It is a tube inserted directly into the bladder through its abdomen and attached to a bag, which Anna empties several times a day.
Despite fighting her mental health at first, Anna has found more confidence.
She said: “Acknowledging that it was a lifetime it was too much to get my head and I was in the hospital for my mental health last year.
“But I’m slowly getting there, and now I’m used to the bag.
“I’ll wear shorts and tops where you can see – doesn’t bother me anymore.
“People ask questions and I’m fine with that.”
Anna ended up in hospital in January 2024 when she developed the sepsis of infection in her stomach where the tube was inserted.
She ended up in intensive care for three weeks before she was downloaded.
“I still have many issues because of the situation,” she said.
“I developed sepsis and worsened.
“I remember thinking I was dying.
“Fortunately, I was already in the hospital and they caught it in time.”
Anna underwent clinical test in 2020 for a cardiac stimulation of the sacral nerve – a device that sends signals from the brain that controls urination.
Unfortunately, its bladder function was “too low” to continue the study.
For now, Anna has found comfort and support with other friends suffering online.
She said: “At first I thought that I should be the only person in the world who was going through something like that, it’s so insulating to be in that position.
“But finding a community of people who realize it was extraordinary.”
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